Now that I am so invovled with hosptials and heart groups etc..I know a lot of babies with heart issues.
Now to make this clear before I proceed I never want any family to suffer like we did...6 months in ICU with your baby on a vent is not something i would wish on my worst enemy.
However every time I hear of somone getting discharged from the hospital after a couple weeks in 4D after a transplant,or somone who has CoA and gets let home 2 weeks after surgery and still has their own heart..i get pissed. it hurts me to see how well these baby's do.
Why did we have to suffer so much? its really not fair.
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